PUBLICATIONS / PUBLICACIONES
IFFS - UIT Resource Center
Scientific Journals / Journaux Scientifiques / Periódicos Científicos
Editors (publications) / Editeurs (publications) / Editores (publicaciones)
Libraries / Bibliothèques / Bibliotecas
SCIENTIFIC SOCIETIES /
SOCIETES SCIENTIFIQUES /
WEB SITES / SITES INTERNET / LUGARES WEB
ASSOCIATIONS OF PATIENTS / ASSOCIATIONS DE PATIENTS /
ASOCIACIONES DE PACIENTES
- Association nationale d'entraide des parents de naissances multiples - ANEPNM
President : Mme Fabienne MEG
Address : 26, boulevard Brune - 75014 PARIS - France
Tel.: +33 (0) 1 40 44 44 15 / 1 45 20 18 11
- Association Pauline et Adrien
President : Mme Chantal RAMOGIDA
Address : B.P 2-920 chemin du Pré Seigneur - 78670 VILLENNES SUR SEINE - France
Tel.: +33 (0) 1 39 75 66 42 - Fax : +33 (0) 1 39 75 92 47
To inform and support infertile couples.
To inform its members on medical, legal and social aspects of infertility and of its treatments.
To organise conferences on infertility related subjects.
To conduct surveys.
- Réseau DES France
President : Mme Anne LEVADOU
Address : 12, rue Martinon, 40 000 Mont-de-Marsan - France
Tel./Fax : + 33 (0) 1 40 21 95 13
To inform and support persons concerned by problems linked to distilbene.
To create a solidarity network.
To participate to workshops.
To organise meetings.
To cooperate with DES-action groups in particular the DES-cancer groups worldwide.
- Endometriosis Association
President / Executive Director : M.L. BALLWEG
Address : 8585 N. 76th Place - Milwaukee - WI 53223 - USA
Tel.: + 1 414 355 2200 - Fax : + 1 414 355 6065
- Turner Syndrome Society of the United States
President : Tina M. JONES E-Mail : email@example.com
Executive Director : Lynn-Georgia TESCH E-Mail : firstname.lastname@example.org
Address : 1313 SE Fifth Street, Suite 327 - Minneapolis, MN 55414 - USA
Tel.: + 1 612 379 3607 / +1 800-365-9944 - Fax : +1 612 379 3619
Website : http://www.turner-syndrome-us.org
To increase public awareness and understanding of Turner's Syndrome;
To increase understanding of those affected by Turner's Syndrome about the condition and its associated problems;
To provide a forum where those affected by Turner's Syndrome can become acquainted with others in similar situations and thereby gain some understanding of how to cope with the problems created by the condition;
To work together with medical and health-care professionals to better understand the condition through research and communication of ideas.
- IFIPA - International Federation of Infertility Patient Associations
President : Mrs Clare BROWN E-Mail : ClareBrown@child.org.uk
Address : Charter House - St Leonard's Road - BEXHILL ON SEA, East Sussex TN40 1JA - United Kingdom
To promote better understanding of infertility and related issues world-wide in the interest of individuals suffering from infertility and the impact on the lives of those affected;
To create a forum for discussion of critical issues concerning infertility, and to share information on infertility;
To assist, when requested by a member association, in the coherence and co-ordination of the actions and programs of its members in their respective countries and to provide support to its members in their activities;
To keep its members informed on scientific, medical, psycho-social, ethical and legal developments in the field of infertility.
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